Відео

❤ to see you! Again thank you for your kind words. Friends and family always appreciate the input and encouragement offer! Stay strong 🥰❤😢❤🎉❤😊

Thank you so much for this video, Andrea! I am about four years into this diagnosis and continue to learn so much every day. This video was huge for helping me navigate the Omnipod 5, since it never seemed that the algorithm was strong enough for me. I am a healthcare provider myself and realize our providers are doing their best to keep us safe and healthy, but these hacks have really helped give me better control! Keep doing what you’re doing, I appreciate you!

It is interesting to see that you need to go through such "tricks" for the system to be more aggressive. On my channel I reviewed this year's Omnipod study (made by people of the company), and it seems that there lowest possible target average glucose is 110 (or 6.1 mmol). Also, and interestingly, half of adults in that studies did not manage to get 70% or more time in range. I wonder in your case if some other automatic systems like Ypsopump would give you more flexibility? Have you thought of switching to that rather than having to do things like "pump and dump" as you describe?

Interesting comparison. I had made a video about Fiasp actually, but it is of course worth trying both ua-cam.com/video/hYd2Pl0dJ4c/v-deo.html I think it is good for people to try different insulins so that they can find the best one. I sometimes wonder why doctors choose Fiasp or Lyumjev for their patients, given that both insulins, at least on paper, are very similar in action profile.

Okay so in the UK our Healthcare costs come out of general taxation and in effect the more wealthy you are, the more tax you pay, if those wealthy people didn’t want to do that they would move elsewhere. The UK system ensures treatment is available to all at the point of need, because we’e a caring society. What would USA Americans do if their Healthcare model was applied to Firefighting, or Defence or Homeland Security?

Sorry but you are giving a very distorted and misinformed view of US healthcare vs UK. In the UK you have glaucoma or cataracts.....wait 18 months for treatment. Need a new joint....wait a year or never. You do not have to have your credit card out to get care in US. Walk into any ER and you will be seen no questions. I have Medicare Advantage. I pay ZERO$ monthly. I pay $ZERO to see my regular doctor. I pay $35 to see a specialist. My wife had 3 surgeries in the span of a year. We paid out of pocket $1750. US best care in the world. My wife has to see MULTIPLE specialists for several problems. The most we waited to get in was 45 days. If a problem further developed before that appointment we would be seen immediately by our primary or the ER.

Merhaba 😊 "walk at home" UA-cam kanalı videolarındaki egzersizleri yapıp sonrasında hiperglisemi olan tek ben miyim? Tempolu egzersiz sonrası hiper çok üzücü 😢

My daughter uses the Omnipod Dash at the moment. We find that on the third day the adsorption seems to be a lot worse meaning she tends to go high and a lot more insulin in used. I assume this would cause an issue with the Omnipod 5 algorithm?

I’ve been on the Omnipod 5 since August, my doctor said I know my body and my sugars better than doctors he said that if I need to adjust anything go to the manual mode and edit your basal rate and carb changes if needed and so far it’s helped.

There will never be a cure to diabetes. To do so would break the world economy.

I was diagonsed in 1974 at age 24. I had gone from 155 lb. to 115 lb. I was making chocolate malts on our newly received wedding gift, an Osterizer mixer, in an attempt to gain weight. Fortunately, my mother-in-law saw me in the middle of the night while I was making one of my frequent trips to the bathroom and noticed my protruding ribs. She told my wife the next morning to make an appointment for me with an endocrinologist. She did, and he gave me a glucose tolerence test. My blood sugar level was 880 mg/dL. I was hospitialized for five days and put on insulin (in those days it was pork insulin, insulin extracted from a pigs pancreas at the slaughterhouse). My doctor told me that we would reverse roles, no one knew my body better than I did, so I was to be my physician and he would be my consultant. He told me to learn as much as I could about the disease (then referred to as juvenile diabetes) by joining the American Diabetes Association and subscribing to it's publications. Excellent advice! I am now on an insulin pump and have a continuous glucose monitor (CGM). I have pretty good control, with a recent a1c of 6.1.

After years of telling my husband that I wasnt crying in a hypo because I was pissed off, but that it is what it does to your nervous system, he still used to shout at me about it..he is now ex as he didnt want a wife with Type 1 and went off and cheated on me. I am not a bad or difficult person. He certainly wouldnt be like yours. He also used it to beat me up verbally and mentally with and use against me. And I am a good a type 1 as possible so now I keep everything to myself and don't tell anyone what is happening to me. Apart from my Mum who is great and understands. I am better off without diabetes police but it is very lonely.

Outstanding comparison/presentation! Thank you!!

If you ever wanted to make some guided meditation type videos, I feel like your voice would be perfect for it

So true! Everyday I live with this going on in my head! Spot on!

Totally agree. My wife is fantastic always looking out for me,even though all the various alarms can drive her mad and me to be fair 😂

I was diagnosed 3 years ago at age 47. Didn't even know you could get diabetes that old. Hardest thing ever. I've had more than one break down bc of the stress. 😢❤

Everyday

To keep my glucose in range, I do NOT eat/drink starchy carbs, sugar, caffeine, 99.9% processed foods (I a lot of peanut butter lol), I eat very tiny portions. Not a fun life. No pump, yet. At 70, this is a new diagnosis. Ugh.

I need more diabuddies😊

Im very glad that I found this channel and again thank you so much for making me feel less alone on the Diabetes journey ❤😢

Sometimes I feel like I'm alone people say I understand but if they don't live with the disease they don't know what we go through.

Holy moly, I feel so seen right now. Thank you!

I've never had anyone make sure I'm ok. I'm just made to feel bad for having a rough diabetes day.

Life is easier for anyone with a chronic condition when those who love them understand what makes a good or hard day. Diabetes is complex. It takes effort to understand. Retired Endocrinology RN

My wife is fantastic in this regard! She really goes out of her way to cook low carb meals!

Yes, it’s true. It’s a chronic disease. I’ve been living with it for 40 years now. Thank God for the new technology! Just put your mind to it and we’ll be fine.

I had a pcp who ordered a GAD 65 test, but NEVER talked to me about results. 5 months later, the resident pharmacist was talking to me over the phone about other issues, then asked if pcp talked to me... so she told me I was adult onset type 1. Pcp NEVER talked to me. I was paying for a cheap insulin & trying to figure it out myself for over 2 years!! Changed pcp's, got an endo/diabetes specialist... what a gift ftom God!! I was 67 at diagnosis, in late 2021. But I was not even prediabetic in 2018. I just seldom eat what most people eat daily. Use a dexcom g7, 2 types of insulin, doing very well... at 70, not what I ever imagined for myself in my twight! 😢 years! 😢

I’ve been diabetic for 2 years - I had a total pancreatectomy in 2022 because of pancreatic cancer. I’ve only just found this channel but I love how positive your energy is! I’m from the UK but worked in the states for a few years (before all of this happened) and I got super sick once, and having to be on the phone whilst an insurer convinced me not to have an ambulance because it was too expensive was just crazy… I cannot imagine the stress with private healthcare whilst dealing with these severe health issues. Keep doing what you’re doing and thank you for the videos ❤

I'm a type 1 Diabetic and in my backpack, I carry an organizer pouch of backup insulins/needles/various first aid, a densely packed snack pouch, my primary insulin/needles pencil pouch, and a cute little pouch that fits most all of the different backup meters I've had to use through the years. That's the extent of what I always have related to diabetes management. I try to always carry water but I tend to drink diet sodas typically.. 🙃

Just convinced a 44 year old friend he’s been diabetic his whole life and it’s like oh yeah it explains the mood swings, lack of weight gain, seizures, extreme amounts of pain- he’s still in denial but maybe just maybe I finally got back to him

I had Covey training today at work (From the book The Seven Habits of Highly Effective People) and my diabetes management was one of my important goals so when I saw this video, it was great timing. I think I took just as many notes from your video. Hope you don't mind if I steal your mantra! Thanks!

Totally agree. I often find myself actively trying to 'hide' my condition in ways. I fear that people might get bored of my expressing that I've got low blood sugar after playing soccer/or high blood sugar after a meal or sometimes at random. No one understands T1 unless they have it. And that extends to doctors too, in my experience.

Fellow T1. It is relentless. I count myself lucky in some ways, though. Today (in Scotland) I have free and ready access to insulin and bluetooth glucose monitors and as a result my HBA1C is usually around 6-7%. I often think about those who are (and were) similarly afflicted with this disease who had limited or zero options for control. It's a horrible disease but I've (and I'm sure others who read this) got it as good as it's ever been in terms of management.

My sole mate my partner 33 years killed himself 8 weeks ago his diabetes medication wasn't working right he had real low sugars for a while he wasn't telling anyone by the time I realised it was too late I could not save him

My mother she died 2019 type 1 diabetic the blood sugar is almost 500 also my elder brother he died 2013 on march 20 diabetic high but he died heart attack😢😢

It is exhausting and overwheming no break its a 24/7 disease you have to nurse it everyday, even with all todays technology its still hard, the daily grind of injecting several times a day, I got so many hard lumps on my abdomen and legs. The thing is you dont take insulin and away you go if only its that simple, you cant eat what you like, it can spike like crazy so i have to eat foods that dont spike as much, anyone who says but you can eat what you want and inject are wrong, i cant have chinese or a large pizza or anything like that to myself. Sometimes my blood sugars levels are high where the insulin doesnt always work straight away this is called insulin resistance, if my stress levels are high it stays high it wont budge even with extra insulin, People who dont live with it dont know how difficult it is. Dealing with hypo's and hyper's is a stressful business, its hard to match what the pancreas once did. Its a very serious and challenging disease for us Type 1's. We desperately need a cure soon, it would be better than winning the lottery 🙏

I liked the Man of the Woods album, but I do wonder if being intoxicated and all the stress just made him not want to dance anymore in the past few years. He's meh now

Try having ME. That’s way worse.

100%. It’s exhausting but we won’t let it win!!

Thanks for posting this! Having lived with Type 1 for 42 years the daily grind of living well with T1D is all encompassing and I too wish others knew or understood this. Cheers and wishing my fellow Type ones all the best!

This is incredibly true. At 18 years old at his marine corps physical my son found out hes a type one. We thought the weight loss and thirst was hard poolee training. It took his dream from him. It affects his job now,it affects him dating it affects EVERYTHING!!!!!! His entire day revolves around blood sugar! And dont get me started on ketoacidosis. My son is 27 now doing pretty well now but at 21 years old he broke .......he was too done!!!! We saw the scariest dka we have seen yet. He couldn't breathe , didn't know where he was and the vomiting was awful . This is a cruel horrific disease!!

Yup. No breaks from needles, checking sugar, figuring out meals. BUT..... with a CGM and modern insulin pens, it's not all that bad. Can't imagine being a diabetic 30 years ago!

Thankyou Andrea, So true , we can never, never, take a holiday . Your UA-cam channel has always been a voice for so many of us, to encourage each other, that we are not alone, and not to give up on those tuff days, when our levels don't even make sense. So I wish you, those straight cgm lines, and a happy and healthy mind with it all. 😍

Right on the nail. T1 for 43 yrs and your words are some of the most helpful ones ive heard so far .. thank you.

It's better when everything is organized especially to know if running low on anything i need💙

It is a marathon with no real break. Hope you’re doing well.

I was Diabetic since age 16 Didn't know it until age 17 I was Diagnosed with it 3 Day's before Christmas 2016

I wish my friends had asked me how I was doing sometimes, especially when i was a newly diagnosed teenager. It wasn't as accepted back in the 1980s, so some people didn't even know I had diabetes at all. And I didn't want to bother my parents with anything since they already worried about me enough. It doesn't have to be a therapy session - just say "hey, how is it going for you?"

OMG - past Andrea and future Andrea. Me too! I do much of the same, except I'm MDI. And I have more non-diabetes pills so they get space in my stash too (HBP, etc.) I love the Stasher reusable bags for quick trip "extras" and highly recommend the vial protectors. Lost a brand new bottle of Lantus many moons ago before they were around (in a Tim Hortons, no less!). Appreciate the video! ✌️